As we begin a month dedicated to Autism Awareness, I came across this beautifully written piece by mom-of-four, Mary Hickey. Mary has three sons on the autism spectrum and she writes about how autism has not been a secret in her family – it’s something that has been embraced so that her sons not only get to understand themselves better, but that there’s a community of support surrounding them.
She also shares her perspective on how she discussed autism with her children, which is something many parents struggle with – how, and when, (and if) I discuss my child’s autism diagnosis with them. Mary’s sons came to some awareness on their own at different ages, asking questions – and it was at those moments that she discussed it with them. And for parents that may be facing a similar situation, she shares what those first conversations sounded like:
Many parents feel paralyzed by figuring out how to approach the initial discussion. I kept the first conversation simple, creating space and encouragement for questions and whatever feelings came up. It differed slightly for each boy, but the overall conversation went like this: “Every person has things that are easy for them and things that they are working on. Your brain works in a very special way that is called autism. It means that some things that are hard for other people, like remembering numbers and all the states and capitols, are easy for you. But it also means that some things, like understanding conversations or what people are trying to say, can be hard for you. It is why sometimes noises, smells and the feeling of things bother you too. But it also means that you are amazing for how hard you work to get through it all! There are a lot of strategies we can use to help make the things that are tough a bit easier. There are lots of people in the world with autism and so many of them have done amazing things. Would you like to learn about some of them?”
While this is a story of how one parent helped her children with their own self-awareness, we honor the broader idea of raising awareness for all, and ultimately, understanding and support. We hope the continued efforts of the autism community – and especially now during Autism Awareness month – will help do just that.
Lynsey, Community Manager